Yay! Went to see the GI yesterday arvo after work, and I'm down to 15mg of Pred a day now. Yay! Happy dance for me though? My joints have decided that they hate me today (again/as usual). Was also told unfortunately that there's no chance of me qualifying for humira/infliximab with the Crohn's alone, so the GI's hopeful that the rhumy can get one or the other (most likely infliximab) for me with the arthritis. See him on Friday, so I'm hoping the ball can start rolling then. I'm getting fed up with the pain, and I'd very much like to come off the Pred completely, but the GI's hesitant to do that until I'm on something else (so much for not wanting to turn me into a druggie...).
Yeah..... Nothing new really apart from that. Other than I'm glad I took the sleeping tablets last night. Still woke up heaps and didn't really sleep that well, but I think I would have only had about two hours again if I hadn't taken them.
Showing posts with label insomnia. Show all posts
Showing posts with label insomnia. Show all posts
Tuesday, August 11, 2009
Monday, July 27, 2009
Sleep! Wonderful sleep!
Friday saw me trundle off to work. Also saw me trundle back home less than an hour later. Feeling pukey, dizzy, sore throat, ears blocked, nose blocked, coughing. The whole shebang. Curled up and watched Weeds. Instant fixer-upper, though a bit of a downer when I realised I have no more new episodes to watch. I believe I may have tried to read at some point too. Took a sleeping tablet and passed out at 8:30 or so, didn't wake up until 8 the next morning when the phone woke me up. Call not for me, was slightly grumpy at being woken up and proceeded to doze for another hour or so.
Saturday saw me wander to Bunnings (giant big hardware store of goodness!) despite feeling like complete and utter crap. Found the paint section and proceeded to gather any piece of paper that had a pretty colour on it (read: bright colours). See, I want my own place one day, but am getting impatient with the whole waiting until I have a deposit saved. Getting paint chips reminds me that I need the deposit in order to get my own place in order to paint it with said pretty colours. Went home, sat and crocheted for the afternoon. Blanket is vaguely happening. Had another sleeping tablet after The Bill (British drama-y goodness, oh how I love it!) and didn't wake up for ten and a half hours. Lovely!
Yesterday I felt a bit better (yay! Happy dance!) and went out again (the answer to "Do I ever have a day where I don't go out?" is "Yes, once in a blue moon"). Found fun comfy chairs to play with (seriously, when did office chairs become good enough that you can use them as an arm chair AND a rocking chair?), the camera I want for over $100 less than RRP (will buy after next pay day. Insert happy squealing here!), and horseshoe gramma (makes for delicious pies made by mum).
No sleeping tablets, and thus today I've been awake since 3am. Insomnia is a bitch that I would like to slaughter. Can't have slaughter without laughter...... Ahem. Have had coffee. Much. Very strong. Am awake. Really. But on the bright side, I do feel somewhat better today. While I'm still dizzy, my nose is unblocked enough that I can breathe through it, and my ears seem to be unblocking occasionally, which is awesome for hearing.
My fish appreciated a water change. And I proceeded to dye their water green again. :D Worried about my little black one. Still has the white spot on his side. Not sure if it might be getting bigger too.... New plants are in order I think too. Next pay day.... Running slightly low on money this fortnight. That's what I get for trying to save and spend at the same time.
Saturday saw me wander to Bunnings (giant big hardware store of goodness!) despite feeling like complete and utter crap. Found the paint section and proceeded to gather any piece of paper that had a pretty colour on it (read: bright colours). See, I want my own place one day, but am getting impatient with the whole waiting until I have a deposit saved. Getting paint chips reminds me that I need the deposit in order to get my own place in order to paint it with said pretty colours. Went home, sat and crocheted for the afternoon. Blanket is vaguely happening. Had another sleeping tablet after The Bill (British drama-y goodness, oh how I love it!) and didn't wake up for ten and a half hours. Lovely!
Yesterday I felt a bit better (yay! Happy dance!) and went out again (the answer to "Do I ever have a day where I don't go out?" is "Yes, once in a blue moon"). Found fun comfy chairs to play with (seriously, when did office chairs become good enough that you can use them as an arm chair AND a rocking chair?), the camera I want for over $100 less than RRP (will buy after next pay day. Insert happy squealing here!), and horseshoe gramma (makes for delicious pies made by mum).
No sleeping tablets, and thus today I've been awake since 3am. Insomnia is a bitch that I would like to slaughter. Can't have slaughter without laughter...... Ahem. Have had coffee. Much. Very strong. Am awake. Really. But on the bright side, I do feel somewhat better today. While I'm still dizzy, my nose is unblocked enough that I can breathe through it, and my ears seem to be unblocking occasionally, which is awesome for hearing.
My fish appreciated a water change. And I proceeded to dye their water green again. :D Worried about my little black one. Still has the white spot on his side. Not sure if it might be getting bigger too.... New plants are in order I think too. Next pay day.... Running slightly low on money this fortnight. That's what I get for trying to save and spend at the same time.
Thursday, July 23, 2009
So yesterday was a day at home. I rang the doctor's surgery in the morning and whinged and whinged enough that they squeezed me in, despite having no appointments left. GP was in a friendly mood when I saw him, possibly because it was just after lunch, but whatever the reason, I'm not complaining. Talked to him about the arthritis, which the rhumy had just said in his letter was inflammatory arthritis, no name or anything. Intelligent idiot that I am though, I forgot to ask for pain killers. Did get a renewal for a script I needed, and got put on antibiotics for the cold with strict instructions to go back immediately if my cough turns into a chesty one. Incidentally, the antibiotics he put me on? They're the ones he put me on last time I was sick for ages. And the diarrhea never went away. And they diagnosed me with Crohn's. Also asked for sleeping tablets, and was given them (or at least the prescription, I had to pay for the meds) on the proviso that I don't take them every night and get myself hooked.
Otherwise yesterday was a typical sick day. Grumpy, tired, sore throat, blocked ears, headaches.... Yet it was actually a rather productive day. Finished reading Tandia by Bryce Courtenay, restarted my scarf (for the gazillionth time 'cause I keep stuffing it up) and got a bit of it done (before my elbow started complaining), played the ds for a while, watched some of my The Cook and The Chef dvds (note to self: must make the lamb and barley stew!), and started reading The Girl In Time Square by Paullina Simons.
Today I'm at work. I have trouble dealing with my family sometimes when I'm healthy, it's made all the more difficult when I'm not well. Don't get me wrong, most of the time we get along fine. Just sometimes they're, well.... Family. Still not anywhere near 100%, still stuffed up beautifully in the nose, ears are on holiday, head's aching a bit, throat has improved a bit but is still sore.... Bah to colds.
Changed the water for the fish today. Not even sure that it needed it, but they've had the same water nearly two weeks now, so I figure it can't hurt. Turned their water green again too. And managed to confuse them something wonderfully by giving them some new/different food. They're used to flakes, and I thought they might like some granules for a treat. You know, I think I'm actually growing quite fond of them, as opposed to just having them because they're the only animal I'm allowed to have. Particularly my little black one. He's cute. ^.^
Need to be harder on myself. I can manage this for maybe a day, and then I cave and break and end up with stuff from the vending machine, or fast food. Need to be hard! I am a rock! Can't break if I'm a rock. :D
Also worried slightly about the poop. Today I had the urgent "must go now" bit, and went and it was slimey. Like it was before the meds. So I don't know if it's the lack of Pred, something I've eaten or drank (I found guava juice. I love it lots.), or the antibiotics. *sigh* Why can't things just be simple for once? And particularly involving something as simple as wretched poo!
Also, I think I love these. They're amusing things that I've found at a few stores here recently, and I can't help but smile when I see them. Possibly the sick and twisted humour of a Crohnie, but hey. Sometimes, you've gotta laugh or you'll cry.
http://www.the-turds.co.uk/
Otherwise yesterday was a typical sick day. Grumpy, tired, sore throat, blocked ears, headaches.... Yet it was actually a rather productive day. Finished reading Tandia by Bryce Courtenay, restarted my scarf (for the gazillionth time 'cause I keep stuffing it up) and got a bit of it done (before my elbow started complaining), played the ds for a while, watched some of my The Cook and The Chef dvds (note to self: must make the lamb and barley stew!), and started reading The Girl In Time Square by Paullina Simons.
Today I'm at work. I have trouble dealing with my family sometimes when I'm healthy, it's made all the more difficult when I'm not well. Don't get me wrong, most of the time we get along fine. Just sometimes they're, well.... Family. Still not anywhere near 100%, still stuffed up beautifully in the nose, ears are on holiday, head's aching a bit, throat has improved a bit but is still sore.... Bah to colds.
Changed the water for the fish today. Not even sure that it needed it, but they've had the same water nearly two weeks now, so I figure it can't hurt. Turned their water green again too. And managed to confuse them something wonderfully by giving them some new/different food. They're used to flakes, and I thought they might like some granules for a treat. You know, I think I'm actually growing quite fond of them, as opposed to just having them because they're the only animal I'm allowed to have. Particularly my little black one. He's cute. ^.^
Need to be harder on myself. I can manage this for maybe a day, and then I cave and break and end up with stuff from the vending machine, or fast food. Need to be hard! I am a rock! Can't break if I'm a rock. :D
Also worried slightly about the poop. Today I had the urgent "must go now" bit, and went and it was slimey. Like it was before the meds. So I don't know if it's the lack of Pred, something I've eaten or drank (I found guava juice. I love it lots.), or the antibiotics. *sigh* Why can't things just be simple for once? And particularly involving something as simple as wretched poo!
Also, I think I love these. They're amusing things that I've found at a few stores here recently, and I can't help but smile when I see them. Possibly the sick and twisted humour of a Crohnie, but hey. Sometimes, you've gotta laugh or you'll cry.
http://www.the-turds.co.uk/
Tuesday, July 21, 2009
Bah Humbug
So what does a bad cold and joint pain and lack of sleep do to me? Makes me a darn heap grumpier than usual for one. Also makes me tired and snuffly and sore too.
Went to bed about 10:30ish, was asleep by 11. 2am rocks around and either my hip (which had decided I needed pain) or my cold woke me up. Bright eyed and bushy tailed. It's now nearly 12 hours later and I'm still waiting to get back to sleep. Which will have to wait until after work. And dinner.
The cold. The evil, shit faced cold. And yes, I'll swear outright. It's been gradually getting worse, but never really anything more than a snuffly nose and a vaguely stuffy head. My throat is butchering me, and I'm having all sorts of fun hearing. Again, this is since 2am. And I now have a drawer of my desk solely dedicated to cough drops. I have Butter Menthols, Eucalyptus and Honey things, and then just plain ol' Eucalyptus ones.
And then there's the joints. Usual whinging about them and the doctors goes here.
I think I may need to march myself off to the GP and get him to give me painkillers and sleeping tablets and something for the cold/flu. I can't see my sanity remaining intact much longer if this all keeps up.
On the other hand, my dosage of Prednisone was reduced again this morning to 20mg. Could other people please do the Yay Happy Dance for me? This involves jumping up and down slightly, though not too much, squealing like a child, waving your arms, and flapping your hands. Grinning like a mad person is also part of the Yay Happy Dance. If it helps, have a strong coffee about ten minutes before doing said dance. I would do it myself, except the above mentioned crap is kinda weighing me down and outweighing the happy.
Mentioned breeding fish at home last night. Surprisingly, didn't get any form of argument from my father. Coulda knocked me over with a feather. I think though that there may be slightly stronger protesting if I went about trying to set a tank up at home though. Eh. We'll see.
Speaking of fish, my fish at work are still going well (albeit unnamed). The little black one still has his white spot on his side, but I don't think it's getting any bigger, so there's a plus. Still, I've made the water go bright green again. It can't hurt, and hopefully it'll start clearing it up soon if I keep the treatment up. Cute little thing. Hope it isn't hurting him. :(
No kitten in the bottom drawer. :P
Went to bed about 10:30ish, was asleep by 11. 2am rocks around and either my hip (which had decided I needed pain) or my cold woke me up. Bright eyed and bushy tailed. It's now nearly 12 hours later and I'm still waiting to get back to sleep. Which will have to wait until after work. And dinner.
The cold. The evil, shit faced cold. And yes, I'll swear outright. It's been gradually getting worse, but never really anything more than a snuffly nose and a vaguely stuffy head. My throat is butchering me, and I'm having all sorts of fun hearing. Again, this is since 2am. And I now have a drawer of my desk solely dedicated to cough drops. I have Butter Menthols, Eucalyptus and Honey things, and then just plain ol' Eucalyptus ones.
And then there's the joints. Usual whinging about them and the doctors goes here.
I think I may need to march myself off to the GP and get him to give me painkillers and sleeping tablets and something for the cold/flu. I can't see my sanity remaining intact much longer if this all keeps up.
On the other hand, my dosage of Prednisone was reduced again this morning to 20mg. Could other people please do the Yay Happy Dance for me? This involves jumping up and down slightly, though not too much, squealing like a child, waving your arms, and flapping your hands. Grinning like a mad person is also part of the Yay Happy Dance. If it helps, have a strong coffee about ten minutes before doing said dance. I would do it myself, except the above mentioned crap is kinda weighing me down and outweighing the happy.
Mentioned breeding fish at home last night. Surprisingly, didn't get any form of argument from my father. Coulda knocked me over with a feather. I think though that there may be slightly stronger protesting if I went about trying to set a tank up at home though. Eh. We'll see.
Speaking of fish, my fish at work are still going well (albeit unnamed). The little black one still has his white spot on his side, but I don't think it's getting any bigger, so there's a plus. Still, I've made the water go bright green again. It can't hurt, and hopefully it'll start clearing it up soon if I keep the treatment up. Cute little thing. Hope it isn't hurting him. :(
No kitten in the bottom drawer. :P
Monday, July 20, 2009
Disney and pain
Hmmm. So. The weekend. It existed. There we go, that's a start. :)
Saturday came and it was sunny! It's been raining a fair bit recently, or at least threatening to, so I took the opportunity to do what the rhumy suggested and go for a walk. I packed me and the camera into the car and went to a nearby botanic gardens and went trigger happy. It was nice to get out and relax for a few hours, but things started aching a bit.
Got home and got sorted out again and then off I went to go and see the magic that is Disney On Ice - Princess Wishes. Me? Adult? I think not! Was going with a friend, so went to pick her up from work and had a coffee while I waited. Double shot latte. Do you know how long it takes for a double shot latte to start wearing off? At least four or five hours. Be afraid.
Disney was amazing! The skaters were fantastic, the music was obviously Disney awesomeness, the costumes were gorgeous to the point that I wanted to run down there and steal them (particularly the Flounder and Lumiere ones)... My inner child has never loved me so much! Bought a program as a souvenir (it came with a pretend rose), and a stuffed toy of Sebastian (I may love him a little too much, and mostly just because of that accent).
Had dinner afterwards in the form of some very yummy fried rice. This was after my attempt at reverse parking. Not such a good idea when coming down off a coffee high. I think I gave up after about the tenth attempt when I just sat there giggling. Easier to find a different park.
Also felt rather pretty on Saturday night. I put effort in. I wore my pretty top that cost me $70 odd, and I let my hair curl, and I wore mascara. And when I got home and caught myself in the mirror, I actually felt pretty. I should try this more often. I should also have taken a photo so I'd remember it.
Speaking of photos, of nearly 400 taken at Disney, only about 3 came out clear. They were all moving too fast!
Saturday night was met with agony and insomnia. Pain in my back, hips, knees and ankles that woke me up and then the delightful insomnia that kept me awake from 2 till 4:30. My rhumy? He says to me last time, "Go for walks, get good sleep, they'll ease the pain.". Yep. 'Kay. How about some pain killers for the agony those walks give me? How about some sleeping tablets to get rid of the insomnia? Oh, you don't want me turning into a druggie? Well you and the GI don't seem to have much of an issue pumping me to the eyeballs with steroids! Pain relief please now!
Dragged out of bed about 10:30 on Sunday morning, having been awake for ages trying to get back to sleep. In utter agony most of the day. Took me over an hour to make my bed. Seriously need something done and I don't see the rhumy again until the 14th of August. Grumpiness will ensue.
Today, still stiff and sore, though not quite to the extent of yesterday. Just taking things as easy as possible. Also plotting for next weekend. Perhaps skipping the walk because I plan on being on my feet a fair bit cooking. Am thinking lasagna and garlic bread. Well, really I'm thinking garlic bread, and whatever main I happen to think will go best with it at the time. :D I love garlic bread.
Saturday came and it was sunny! It's been raining a fair bit recently, or at least threatening to, so I took the opportunity to do what the rhumy suggested and go for a walk. I packed me and the camera into the car and went to a nearby botanic gardens and went trigger happy. It was nice to get out and relax for a few hours, but things started aching a bit.
Got home and got sorted out again and then off I went to go and see the magic that is Disney On Ice - Princess Wishes. Me? Adult? I think not! Was going with a friend, so went to pick her up from work and had a coffee while I waited. Double shot latte. Do you know how long it takes for a double shot latte to start wearing off? At least four or five hours. Be afraid.
Disney was amazing! The skaters were fantastic, the music was obviously Disney awesomeness, the costumes were gorgeous to the point that I wanted to run down there and steal them (particularly the Flounder and Lumiere ones)... My inner child has never loved me so much! Bought a program as a souvenir (it came with a pretend rose), and a stuffed toy of Sebastian (I may love him a little too much, and mostly just because of that accent).
Had dinner afterwards in the form of some very yummy fried rice. This was after my attempt at reverse parking. Not such a good idea when coming down off a coffee high. I think I gave up after about the tenth attempt when I just sat there giggling. Easier to find a different park.
Also felt rather pretty on Saturday night. I put effort in. I wore my pretty top that cost me $70 odd, and I let my hair curl, and I wore mascara. And when I got home and caught myself in the mirror, I actually felt pretty. I should try this more often. I should also have taken a photo so I'd remember it.
Speaking of photos, of nearly 400 taken at Disney, only about 3 came out clear. They were all moving too fast!
Saturday night was met with agony and insomnia. Pain in my back, hips, knees and ankles that woke me up and then the delightful insomnia that kept me awake from 2 till 4:30. My rhumy? He says to me last time, "Go for walks, get good sleep, they'll ease the pain.". Yep. 'Kay. How about some pain killers for the agony those walks give me? How about some sleeping tablets to get rid of the insomnia? Oh, you don't want me turning into a druggie? Well you and the GI don't seem to have much of an issue pumping me to the eyeballs with steroids! Pain relief please now!
Dragged out of bed about 10:30 on Sunday morning, having been awake for ages trying to get back to sleep. In utter agony most of the day. Took me over an hour to make my bed. Seriously need something done and I don't see the rhumy again until the 14th of August. Grumpiness will ensue.
Today, still stiff and sore, though not quite to the extent of yesterday. Just taking things as easy as possible. Also plotting for next weekend. Perhaps skipping the walk because I plan on being on my feet a fair bit cooking. Am thinking lasagna and garlic bread. Well, really I'm thinking garlic bread, and whatever main I happen to think will go best with it at the time. :D I love garlic bread.
Thursday, June 18, 2009
Miracles may happen...
So today I'm at work. And my hands work! Yay! As weird as it was yesterday with my hands in agony, it's just as weird that they've done a complete turn around today. Though, I've been typing, and using the mouse, and playing with the blue tack, so I'm expecting they'll be sore later.
Point of this post is that I just had a call from the rhumy's office and they can fit me in tomorrow at 12:30 as opposed to some random date in August, so yay! My boss's response when I told him? "Haha, you'll miss out on the barbeque!" Did I mention previously that my work place is very good with it all? *does a happy dance* Pain relief, here I come!
Meanwhile, last night was a bitch. Went to sleep about 10 or so, woke up at 12 with the sweats. And insomnia. A chapter of Harry Potter and three hours later I finally managed to get back to sleep. Only to wake up again at 5:30 and notice the sweats had continued through the night, despite throwing everything off and freezing. Eh. Can sleep tonight and tomorrow arvo.
No kitten in my drawer. ;D There is a coffee in front of me however, so this nearly makes up for it.
Point of this post is that I just had a call from the rhumy's office and they can fit me in tomorrow at 12:30 as opposed to some random date in August, so yay! My boss's response when I told him? "Haha, you'll miss out on the barbeque!" Did I mention previously that my work place is very good with it all? *does a happy dance* Pain relief, here I come!
Meanwhile, last night was a bitch. Went to sleep about 10 or so, woke up at 12 with the sweats. And insomnia. A chapter of Harry Potter and three hours later I finally managed to get back to sleep. Only to wake up again at 5:30 and notice the sweats had continued through the night, despite throwing everything off and freezing. Eh. Can sleep tonight and tomorrow arvo.
No kitten in my drawer. ;D There is a coffee in front of me however, so this nearly makes up for it.
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