Day 4 of prednisone. Still not comfortable taking the stuff, but hey, when is anyone ever comfortable taking pred? Spent the night tossing and turning, woke up a million times. Had a headache yesterday and stupidly took nothing for it. Kicked in big time over night, had some panadol about 3:30 am, and the headache went away about half hour later.
Think the flagyl is still making me crook. Thinking about taking myself off it despite any protests from the GI, I see no sense in staying on a med that doesn't seem to be benefiting my health, if anything it's making me worse. Unlike the GI I don't earn enough to be able to shrug it off when I need to take weeks off unpaid (because of the side effects from flagyl).
Legs are also starting to feel like they're going to cramp, expect they probably will in the next few days.
Anyway, just trying to keep a vague track of things with meds, so probably just short posts.
Friday, March 29, 2013
Monday, March 25, 2013
Well damn...
Well I'm still crook. Haven't seen the doc, but he is adamant that I stay on the Flagyl which is depressing enough. He's also prescribed me Prednisone again, this time higher than the dose he gave me when I was first diagnosed. Oh yeah, and I get to stay on the Humira. Don't quite know how he figures I need the flagyl, the test results came back saying I don't have an infection. Eh. I'm not the doc, am I?
Don't really feel much like a giant post today, just feeling like complete crap and feel like the fight's gone out of me. Why bother fighting something that's only going to keep on coming back? I know I'll wake up in a few days time and feel a little better, but right now I just wanted to tell the world I feel like shit. Self centred I know, but hey. When you have any sort of ongoing health issues I think you automatically qualify for the right to mope.
Don't really feel much like a giant post today, just feeling like complete crap and feel like the fight's gone out of me. Why bother fighting something that's only going to keep on coming back? I know I'll wake up in a few days time and feel a little better, but right now I just wanted to tell the world I feel like shit. Self centred I know, but hey. When you have any sort of ongoing health issues I think you automatically qualify for the right to mope.
Saturday, March 23, 2013
Long Time No See...
Well it's been a while. Things have been pretty good, until the last few weeks at least, so I guess that's why I'm back in the blog-o-sphere. Always thought I'd keep blogging even when things were good. Guess I didn't after all. Anyways.
The last year and a bit has been pretty amazing actually. I've had cold after cold but the Crohn's has been fairly under control, thanks to the wonder drug Humira. I've had luck at work, I've been on secondment for the last 12 months, and I love the team I'm in. The people are brilliant, the work is good and the pay is pretty damned sweet.
Today also marks 12 months since I exchanged contracts on my house. :) Worked hard, and got pretty much everything I had ever asked for in a house. A large block, a good house, a good location. Pretty lucky.
And to top it off a pretty amazing man walked into my life last July. He's a pillar of strength, and I'm still awed every morning when I wake up and realise it's real, that he is here and it's not just a dream. And the last few weeks I've needed his shoulders to cry on and he's been unfaltering in his support.
A few weeks ago I was carted off to hospital with chest pains, which thankfully have turned out to not be heart related, but have left a bit of a mystery as to what has caused them. The last few days that I was off work with the chest pains, I started getting the runs. With slime. And blood. So off to the GI I went. So far, about the best he can tell me is that it might be a flare. Might. The bloods all looked pretty good a while back when I first started feeling bad. Not sure what they're like at the moment, see the GI again in a bit over a week. In the meantime I'm on the beloved flagyl. So of course the stomach pain is worse, the 16 imodium I've had in the last 48 hours has doesn't nothing, the blood and the slime and the gas and the bloating has all gotten worse, and let's not forget the vomiting and nausea. Bad enough that I'm now off work, unpaid, due to the side effects of the flagyl. And the GI is insistent that I remain on the flagyl. At least I don't have the metallic taste in my mouth this time.
The next step is back on the prednisone in addition to the Humira. I'm dreading it. When the GI told me that on the phone I had a minor panic attack, for want of better words. All I could do was sit there and cry and rock for a while. And all the while I know that that's where I'm going to end up. The flagyl just isn't working, and I'm so pissed off that the GI is telling me I have to stay on it when all it's doing is resulting in me facing the possibility of not meeting a house repayment.
I feel almost like I'm back at the beginning of Crohn's. I feel I'm facing the unknown again. I don't know what's even happening a the moment. All I know is I'm in pain, mostly made worse by the flagyl. And the doc won't take me off it until he throws me back on the pred. And if that doesn't work? Facing maybe the possibility of surgery.
I dunno. Just feeling lost, so I guess I'm back here again for a bit.
Might take a holiday, but I guess you won't see the end of me for a while yet.
The last year and a bit has been pretty amazing actually. I've had cold after cold but the Crohn's has been fairly under control, thanks to the wonder drug Humira. I've had luck at work, I've been on secondment for the last 12 months, and I love the team I'm in. The people are brilliant, the work is good and the pay is pretty damned sweet.
Today also marks 12 months since I exchanged contracts on my house. :) Worked hard, and got pretty much everything I had ever asked for in a house. A large block, a good house, a good location. Pretty lucky.
And to top it off a pretty amazing man walked into my life last July. He's a pillar of strength, and I'm still awed every morning when I wake up and realise it's real, that he is here and it's not just a dream. And the last few weeks I've needed his shoulders to cry on and he's been unfaltering in his support.
A few weeks ago I was carted off to hospital with chest pains, which thankfully have turned out to not be heart related, but have left a bit of a mystery as to what has caused them. The last few days that I was off work with the chest pains, I started getting the runs. With slime. And blood. So off to the GI I went. So far, about the best he can tell me is that it might be a flare. Might. The bloods all looked pretty good a while back when I first started feeling bad. Not sure what they're like at the moment, see the GI again in a bit over a week. In the meantime I'm on the beloved flagyl. So of course the stomach pain is worse, the 16 imodium I've had in the last 48 hours has doesn't nothing, the blood and the slime and the gas and the bloating has all gotten worse, and let's not forget the vomiting and nausea. Bad enough that I'm now off work, unpaid, due to the side effects of the flagyl. And the GI is insistent that I remain on the flagyl. At least I don't have the metallic taste in my mouth this time.
The next step is back on the prednisone in addition to the Humira. I'm dreading it. When the GI told me that on the phone I had a minor panic attack, for want of better words. All I could do was sit there and cry and rock for a while. And all the while I know that that's where I'm going to end up. The flagyl just isn't working, and I'm so pissed off that the GI is telling me I have to stay on it when all it's doing is resulting in me facing the possibility of not meeting a house repayment.
I feel almost like I'm back at the beginning of Crohn's. I feel I'm facing the unknown again. I don't know what's even happening a the moment. All I know is I'm in pain, mostly made worse by the flagyl. And the doc won't take me off it until he throws me back on the pred. And if that doesn't work? Facing maybe the possibility of surgery.
I dunno. Just feeling lost, so I guess I'm back here again for a bit.
Might take a holiday, but I guess you won't see the end of me for a while yet.
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