Well it's been a while. Things have been pretty good, until the last few weeks at least, so I guess that's why I'm back in the blog-o-sphere. Always thought I'd keep blogging even when things were good. Guess I didn't after all. Anyways.
The last year and a bit has been pretty amazing actually. I've had cold after cold but the Crohn's has been fairly under control, thanks to the wonder drug Humira. I've had luck at work, I've been on secondment for the last 12 months, and I love the team I'm in. The people are brilliant, the work is good and the pay is pretty damned sweet.
Today also marks 12 months since I exchanged contracts on my house. :) Worked hard, and got pretty much everything I had ever asked for in a house. A large block, a good house, a good location. Pretty lucky.
And to top it off a pretty amazing man walked into my life last July. He's a pillar of strength, and I'm still awed every morning when I wake up and realise it's real, that he is here and it's not just a dream. And the last few weeks I've needed his shoulders to cry on and he's been unfaltering in his support.
A few weeks ago I was carted off to hospital with chest pains, which thankfully have turned out to not be heart related, but have left a bit of a mystery as to what has caused them. The last few days that I was off work with the chest pains, I started getting the runs. With slime. And blood. So off to the GI I went. So far, about the best he can tell me is that it might be a flare. Might. The bloods all looked pretty good a while back when I first started feeling bad. Not sure what they're like at the moment, see the GI again in a bit over a week. In the meantime I'm on the beloved flagyl. So of course the stomach pain is worse, the 16 imodium I've had in the last 48 hours has doesn't nothing, the blood and the slime and the gas and the bloating has all gotten worse, and let's not forget the vomiting and nausea. Bad enough that I'm now off work, unpaid, due to the side effects of the flagyl. And the GI is insistent that I remain on the flagyl. At least I don't have the metallic taste in my mouth this time.
The next step is back on the prednisone in addition to the Humira. I'm dreading it. When the GI told me that on the phone I had a minor panic attack, for want of better words. All I could do was sit there and cry and rock for a while. And all the while I know that that's where I'm going to end up. The flagyl just isn't working, and I'm so pissed off that the GI is telling me I have to stay on it when all it's doing is resulting in me facing the possibility of not meeting a house repayment.
I feel almost like I'm back at the beginning of Crohn's. I feel I'm facing the unknown again. I don't know what's even happening a the moment. All I know is I'm in pain, mostly made worse by the flagyl. And the doc won't take me off it until he throws me back on the pred. And if that doesn't work? Facing maybe the possibility of surgery.
I dunno. Just feeling lost, so I guess I'm back here again for a bit.
Might take a holiday, but I guess you won't see the end of me for a while yet.
Showing posts with label antibiotics. Show all posts
Showing posts with label antibiotics. Show all posts
Saturday, March 23, 2013
Thursday, July 30, 2009
The cats are on my side!
So there's this cat that lives somewhere nearby. Beautiful black and white fluffy cat. Months ago, mum and I were outside and it came into the backyard and was meowing and looked scruffy and yeah. Eventually encouraged it to come over and was trying to read the tag on it's collar when dad came out and scared it away (deliberately. Animal hater! And yes dad, I will rub that in any chance I get that you hate the main thing that makes me happy.). Anyway. Said black and white cat no longer comes in our yard when anyone is outside. It does however come and sleep on our comfy outdoor chairs (black and white fur indicates this, as does the occasional glimpse of it as it runs away in the mornings when we turn the light on).
That's the history of the story. The rest of it goes: I want a cat. Dad says no. The other afternoon I couldn't help but laugh. I'd just gotten home from work and was talking to dad in the kitchen, looking out the window while talking. Dad was unpacking the dishwasher so couldn't really see out the window. We have colourbond (metal) fences all around our yard, and occasionally you'll see a cat take a few cautious steps on the top (which is capped so it wouldn't hurt their feet, but it is very narrow) then jump down into a neighbouring yard. While talking to dad, I watched a beautiful brown tabby cat trot along one side neighbour's fence, turn, and start trotting along the back fence. By the time he was half way along I was laughing enough for dad to ask what it was about. I pointed as the cat continued to trot along the fence, and then as if to say "Nyah nyah!", he turned again and trotted along the other side neighbour's fence some distance before jumping down into their yard. All I could say was "The black and white one must have told him not to come in our yard".
...Yeah, not so humourous in the retelling, but it was somewhat amusing at the time. I swear the cats are on my side.
So. Onto the normality of my blogs.
I hate antibiotics. I am sick of crapping liquid (or near enough to it) wrapped in a nice coating of slime. I'm worried in a way though that it's a Crohn's flare and not the antibiotics. I'm getting the Crohn's pains again, and I have backed off the Pred since the last time I had severe problems with the old hag. Though I'm not sure if certain foods are bugging it, and if it were the old hag again then those foods would be causing utter chaos. The thing that bugs me the most at the moment though isn't just that it's more liquified than usual, it's that every single time I go to the ladies my gut/butt decides, "Oh, you're peeing, so you must need to poop too" and I swear it just starts leaking and there's nothing I can do to stop it. Hate!
I did however cave in and read all the fine print on the pamphlet that comes with the antibiotics to see where it said I couldn't have alcohol. Because as everyone knows, antibiotics and alcohol are supposedly a big no-no. But no! I find the bit re alcohol and it just says be careful because in some people it can have adverse affects. But otherwise go ahead! Eat, drink and be merry! So I take that as a thumbs up and off I go. Well.... I allowed myself a drink. Currently alternating each night between Kahlua and gin. Hadn't really had either before, but they were both cheap, and they didn't have my regular rum and I didn't want the other one, so I thought what the heck and bought them and I like them. And there's a lot of ands in that sentence. Oops..... :)
My little black fish still has those big white spots on his side. I'm worried that they won't clear up, the poor thing. Need to turn the water green again soon. I hope it helps him... Otherwise I think they might hate me today. I forgot to turn their light off last night before I left.
Got my money back from my tax return the other day. Just trying to decide whether to spend it on the camera I want or to chuck it in savings. I don't really need the camera, rather just want it, but it could be handy. *shrug* Maybe I can do both.
That's the history of the story. The rest of it goes: I want a cat. Dad says no. The other afternoon I couldn't help but laugh. I'd just gotten home from work and was talking to dad in the kitchen, looking out the window while talking. Dad was unpacking the dishwasher so couldn't really see out the window. We have colourbond (metal) fences all around our yard, and occasionally you'll see a cat take a few cautious steps on the top (which is capped so it wouldn't hurt their feet, but it is very narrow) then jump down into a neighbouring yard. While talking to dad, I watched a beautiful brown tabby cat trot along one side neighbour's fence, turn, and start trotting along the back fence. By the time he was half way along I was laughing enough for dad to ask what it was about. I pointed as the cat continued to trot along the fence, and then as if to say "Nyah nyah!", he turned again and trotted along the other side neighbour's fence some distance before jumping down into their yard. All I could say was "The black and white one must have told him not to come in our yard".
...Yeah, not so humourous in the retelling, but it was somewhat amusing at the time. I swear the cats are on my side.
So. Onto the normality of my blogs.
I hate antibiotics. I am sick of crapping liquid (or near enough to it) wrapped in a nice coating of slime. I'm worried in a way though that it's a Crohn's flare and not the antibiotics. I'm getting the Crohn's pains again, and I have backed off the Pred since the last time I had severe problems with the old hag. Though I'm not sure if certain foods are bugging it, and if it were the old hag again then those foods would be causing utter chaos. The thing that bugs me the most at the moment though isn't just that it's more liquified than usual, it's that every single time I go to the ladies my gut/butt decides, "Oh, you're peeing, so you must need to poop too" and I swear it just starts leaking and there's nothing I can do to stop it. Hate!
I did however cave in and read all the fine print on the pamphlet that comes with the antibiotics to see where it said I couldn't have alcohol. Because as everyone knows, antibiotics and alcohol are supposedly a big no-no. But no! I find the bit re alcohol and it just says be careful because in some people it can have adverse affects. But otherwise go ahead! Eat, drink and be merry! So I take that as a thumbs up and off I go. Well.... I allowed myself a drink. Currently alternating each night between Kahlua and gin. Hadn't really had either before, but they were both cheap, and they didn't have my regular rum and I didn't want the other one, so I thought what the heck and bought them and I like them. And there's a lot of ands in that sentence. Oops..... :)
My little black fish still has those big white spots on his side. I'm worried that they won't clear up, the poor thing. Need to turn the water green again soon. I hope it helps him... Otherwise I think they might hate me today. I forgot to turn their light off last night before I left.
Got my money back from my tax return the other day. Just trying to decide whether to spend it on the camera I want or to chuck it in savings. I don't really need the camera, rather just want it, but it could be handy. *shrug* Maybe I can do both.
Thursday, July 23, 2009
So yesterday was a day at home. I rang the doctor's surgery in the morning and whinged and whinged enough that they squeezed me in, despite having no appointments left. GP was in a friendly mood when I saw him, possibly because it was just after lunch, but whatever the reason, I'm not complaining. Talked to him about the arthritis, which the rhumy had just said in his letter was inflammatory arthritis, no name or anything. Intelligent idiot that I am though, I forgot to ask for pain killers. Did get a renewal for a script I needed, and got put on antibiotics for the cold with strict instructions to go back immediately if my cough turns into a chesty one. Incidentally, the antibiotics he put me on? They're the ones he put me on last time I was sick for ages. And the diarrhea never went away. And they diagnosed me with Crohn's. Also asked for sleeping tablets, and was given them (or at least the prescription, I had to pay for the meds) on the proviso that I don't take them every night and get myself hooked.
Otherwise yesterday was a typical sick day. Grumpy, tired, sore throat, blocked ears, headaches.... Yet it was actually a rather productive day. Finished reading Tandia by Bryce Courtenay, restarted my scarf (for the gazillionth time 'cause I keep stuffing it up) and got a bit of it done (before my elbow started complaining), played the ds for a while, watched some of my The Cook and The Chef dvds (note to self: must make the lamb and barley stew!), and started reading The Girl In Time Square by Paullina Simons.
Today I'm at work. I have trouble dealing with my family sometimes when I'm healthy, it's made all the more difficult when I'm not well. Don't get me wrong, most of the time we get along fine. Just sometimes they're, well.... Family. Still not anywhere near 100%, still stuffed up beautifully in the nose, ears are on holiday, head's aching a bit, throat has improved a bit but is still sore.... Bah to colds.
Changed the water for the fish today. Not even sure that it needed it, but they've had the same water nearly two weeks now, so I figure it can't hurt. Turned their water green again too. And managed to confuse them something wonderfully by giving them some new/different food. They're used to flakes, and I thought they might like some granules for a treat. You know, I think I'm actually growing quite fond of them, as opposed to just having them because they're the only animal I'm allowed to have. Particularly my little black one. He's cute. ^.^
Need to be harder on myself. I can manage this for maybe a day, and then I cave and break and end up with stuff from the vending machine, or fast food. Need to be hard! I am a rock! Can't break if I'm a rock. :D
Also worried slightly about the poop. Today I had the urgent "must go now" bit, and went and it was slimey. Like it was before the meds. So I don't know if it's the lack of Pred, something I've eaten or drank (I found guava juice. I love it lots.), or the antibiotics. *sigh* Why can't things just be simple for once? And particularly involving something as simple as wretched poo!
Also, I think I love these. They're amusing things that I've found at a few stores here recently, and I can't help but smile when I see them. Possibly the sick and twisted humour of a Crohnie, but hey. Sometimes, you've gotta laugh or you'll cry.
http://www.the-turds.co.uk/
Otherwise yesterday was a typical sick day. Grumpy, tired, sore throat, blocked ears, headaches.... Yet it was actually a rather productive day. Finished reading Tandia by Bryce Courtenay, restarted my scarf (for the gazillionth time 'cause I keep stuffing it up) and got a bit of it done (before my elbow started complaining), played the ds for a while, watched some of my The Cook and The Chef dvds (note to self: must make the lamb and barley stew!), and started reading The Girl In Time Square by Paullina Simons.
Today I'm at work. I have trouble dealing with my family sometimes when I'm healthy, it's made all the more difficult when I'm not well. Don't get me wrong, most of the time we get along fine. Just sometimes they're, well.... Family. Still not anywhere near 100%, still stuffed up beautifully in the nose, ears are on holiday, head's aching a bit, throat has improved a bit but is still sore.... Bah to colds.
Changed the water for the fish today. Not even sure that it needed it, but they've had the same water nearly two weeks now, so I figure it can't hurt. Turned their water green again too. And managed to confuse them something wonderfully by giving them some new/different food. They're used to flakes, and I thought they might like some granules for a treat. You know, I think I'm actually growing quite fond of them, as opposed to just having them because they're the only animal I'm allowed to have. Particularly my little black one. He's cute. ^.^
Need to be harder on myself. I can manage this for maybe a day, and then I cave and break and end up with stuff from the vending machine, or fast food. Need to be hard! I am a rock! Can't break if I'm a rock. :D
Also worried slightly about the poop. Today I had the urgent "must go now" bit, and went and it was slimey. Like it was before the meds. So I don't know if it's the lack of Pred, something I've eaten or drank (I found guava juice. I love it lots.), or the antibiotics. *sigh* Why can't things just be simple for once? And particularly involving something as simple as wretched poo!
Also, I think I love these. They're amusing things that I've found at a few stores here recently, and I can't help but smile when I see them. Possibly the sick and twisted humour of a Crohnie, but hey. Sometimes, you've gotta laugh or you'll cry.
http://www.the-turds.co.uk/
Subscribe to:
Posts (Atom)