Sunday, May 30, 2010

Dear Old Hag, please go away.

Ah life.  Where would we be without it apart from enjoying ourselves?

Ahem.  I believe I left you just before I started pooping green waterfalls, so I will take it from there.  Spent the evening pooping green waterfalls and was nill by mouth from midnight until the time of my being knocked unconscious and having things shoved in places they should not be shoved.  I had been told to present to the hospital at 9:30 (despite the doc telling me to arrange a time sometime between 7 and 9), and had been booked in for a 10 am time slot.  At about quarter to one a somewhat tired, cold, hungry, thirsty, contankerous and downright unbearable me was finally knocked out.  Usually scenario of farting like a hippo upon waking up in recovery before being wheeled out into the post recovery area to be treated to sprite and sandwiches.  Made from bread.  Made from wheat.  :/  The sprite admittedly was very good.  The sandwiches remained in their packaging.  Also adding to the usual scenario while in recovery was the doctor coming around and talking to me the moment my eyes had fluttered open (and then promptly closed again) under the assumption that open eyes equates to consciousness.  Hate to tell them, but it really doesn't.  Was driven home by mum, ate a rissole and watched Sherlock Holmes (which actually wasn't quite so bad).

Spent a few days afterwards in increasing degrees of agony, ending with me curling up in a ball and having a bit of a cry at work.  Settled down for a few days and seems to be randomly attacking me.  Since the procedure, have seen my doc (5:30 appointment, I got in there about 6, and didn't get out until around 7:30....) and shock horror was told that there's inflamation present in the terminal ileum.  Really?  Inflamation with Crohn's?  Never would have guessed.  On the bright side, to qualify for Humira you have to have a CDAI of over 300.  Even after they'd taken 10 points off me for being fat (I weigh 75kilos, most things say I should weigh around 55, however the thing for Humira says I should weigh 49.  Imagine if they'd seen me when I ballooned at 95!) I still came out at 388.  Application for Humira is submitted!  Only thing the GI's not sure about, is when I was on Imuran, I had to stop taking it because I was getting crappy headaches.  The government recognises headaches as side effects of the drug, however they do not recognise it was a reason to stop taking it (and still being able to qualify for Humira).  GI said he'll try his best anyway though.  Here's to hoping!  If not, the new reumy (who I see tomorrow arvo) seems fairly confident he can get me there with the joint pain.

Oh, and apparently my liver's still erring a little on the stuffed side, so I'm being sent to get an ultrasound done of it.

In non-Crohn's news, am working.  Well, I get up, drive to a place of work, and get paid for the day.  Am however not doing a damned thing, and I'm starting to get tetchy about it.  I want to work so the memories will leave me alone.  Sitting in a chair doing nothing for eight hours a day is not achieving this.  Hopefully, they'll realise fairly soon that they're paying me to do nothing and will give me something to do.  Oh, also don't believe I mentioned that it took the head office two weeks to arrange a computer for me, as a result of HR and IT arguing over who's job it was to issue me with an employee number.  Like the people, like the place.  Just want some work.

Have been attacking more yarn projects (again, can't show here because people who are receiving said things read this blog.  :P) and been thoroughly enjoying my books.  Rather disappointed in the bookshops though, because I've been looking for particular books for some years now, and they've only just got the series in that I want just when I really can't afford it (paying parents back for stuff, various med bills coming in, and saving for bigger stuff).  Cranky aimed at you A&R!

Fish are being fish.  The redcap is now back in the old fish bowl that they were all in originally, however still in isolation.  It became evident that the tank it was in had sprung a small leak and had been slowly leaking since being filled up a few months ago.  Lump on its side is now looking more like a wart than a blister, so I'm fairly sure the poor thing has a tumor as opposed to anything curable.  The other two are going alright, although the tank's green again for a little while, just not sure if the moor has white spots on him (again!).

Oh, will try and throw a link to this up the side somewhere, but for now, have a link to my Deviant Art account.  A lot of my photography goes up there, as well as food and yarn stuff I've made. 

http://lady-dao.deviantart.com/

Sunday, May 16, 2010

Hah, the joy of it.

Off to dope myself on the first dose of poop liquid in about half hour or so.  I expect about two or three hours after that when I take the big lot is about when I'll become somewhat incapacitated for the evening.  Books are stacked and ready, sports drinks are chilling in the fridge, and right now, I'm going to go and make the most of not pooping by watching a dvd (and also helping mum cook curry for tomorrow night's dinner).  :D

Hope everyone is well.


PS-  I HATE FLAGYL!!!  Can't stand the taste in my mouth right now and not being able to get rid of it.

Friday, May 14, 2010

Stupid Old Hag

Happy birthday to my goldfishies!!!!  :P  Didn't get around to making them a cake, but will as soon as I have the chance/can eat cake again.

Now to non fish news.

Started my new job this Monday.  Week one down!  Struggling a bit, really know nothing about the industry, or the role really, and I still don't understand half the stuff I need to know and the woman who is teaching me the stuff is going away for a possible three months, two at the minimum.  Will soldier on though.  Need the money, need to keep a job.

Also went and saw the new reumatologist Monday arvo.  Took blood test results from the last 12 months as well as the x-rays that the idiot doctor did last year.  Finally, a doctor that can restore a little bit of faith in me.  He rang my GI while I was there, and brought my appointment forward with him to the next day, and they're pushing for the Humira.  Reumy is confident that if the GI can't get it with the Crohn's, he can get it with the joint pain.  Maybe there are gods.....

As mentioned, saw the GI on Tuesday arvo.  I'd had a cold recently, and also stomach pain.  Wasn't sure if it was from the cold, or from damage from the ibuprofen, or from Crohn's.  Stopped taking the nurofen, and hello liquid.  Stomach pain is quite severe sometimes, and everything is going straight through, to the point where recognition of the last meal is incredibly easy.  Food just isn't being digested, and is very obvious as to what it is later on.  Slime is back, and a teeny bit of blood.  It's the pain that's worrying me the most though.  Also have absolutely no appetite.  Only eating to keep everyone else happy really.

This weekend I get to undertake a delightful diet again, only to be knocked out and have things shoved in all sorts of delightful places on Monday.  For those new to my blog, I refer you now to the first or second entry of this blog, one of them details the delights of this and saves me redoing it.

Also been put on Flagyl for a while, just incase all the Crohn's symptoms are not actually the old hag, but an infection instead.  Rather ticked off about this, because the doctor admitted there's a 99.99$ chance it's the Crohn's flaring, but just to be on the safe side, I get to miss out on my stress relief (aka a nice bottle of Bundy rum) for the next week or two.  Bah humbug.

Had blood tests done again the other arvo.  Had to get jabbed three times.  My good vein decided to go to sleep again, so they had to use the other arm, and then they forgot to get some for some particular tests so had to jab me again.  I think they were rather inexperienced 'cause they kept jiggling the needle (probably unintentionally) and so it hurt and bled around the needle while they did it.  Now also have some lovely bruises and track marks on both arms......

Also have to go and get chest xrays to confirm I've not had TB before.  Apparently just some pre-Humira check or something.

Thursday, May 6, 2010

I exist.

Blergh.  Dying from the plague, or at least some doppleganger of it.  Went and got the 'flu shot the other week and have been slowly deteriorating ever since.  Also on the medical side of things, I have an appointment to see a new rheumatologist this coming Monday arvo, so hopefully things'll start going right huh?  Am also needing to see the skin doc again.  The psoraisis is flaring like a bitch - itching, stinging, burning, weeping and oozing to the point of making clothes wet, and it's got the whole rotting flesh smell going on too.  Maybe if the docs work together they can work something out?  Eg - the humira that treats the Crohn's, and the joint pain, and the psoraisis.......

Went and got myself on welfare benefits.  Got my first payment this previous Monday and then yesterday needed to ring up and try to cancel said payments.  Got offered a job!!!  Working with a massive international mining company starting Monday.  They even seem flexible enough to deal with the doc appointments!  Yay for awesome employers!

In a fish update, I'm down to the three goldfish.  The last catfish keeled over and died a few weeks ago now and I'm still scratching my head as to why.  But, the goldfish aren't far out from their first birthday (14th May!) and yes, I'm going to be the crazy pet owner and make them a birthday cake.  :D

Been working on various little projects to try and keep my sanity, when my fingers will allow it, photos will appear eventually.  Promise.  :)

Hope everyone is well/recovering from any bad stuff.