So I've taken myself off the ibuprofen for my joints in the hope that my stomach wouldn't get any worse. Have spent today near doubled over in pain and with yellow liquid coming out my butt, along with barely being able to move from joint pain. Oh, and did I mention I was tired?
Very entirely over chronic illness right now. I mean heck, I was just starting to look for jobs again too, and now chances are that the GI will say he wants to shove things up my butt and then probably tell me he wants me back on the pred. What a great way that'll be to start off a new job.
Apologies, I'm not exactly a happy camper.
Friday, January 15, 2010
Thursday, January 14, 2010
Alive. Really, I am.
Firstly, hope everyone has been having a great 2010 so far.
Secondly, not dead. :D
Time for an update though. New years was spent at home. Tired, and had some sort of bug/virus thing which just wasn't nice. Think I was asleep by about 10 and woke up about 12:05 to fire crackers going off nearby. Five minutes late guys! Vaguely got over that virus and then felt like I had another coming on, though it's settled down.
Absolutely exhausted of late though, fairly certain it's the chronic fatigue flaring again. Seriously, settle most things down and one flares again. Not quite enough hands to keep pushing them down.
Also slightly worried about the Crohn's. My gut's been sore possibly since about Christmas, though I'm really not sure whether it's the old hag again, the remnants of the virus, or just because I've not really been following the fructose free diet. Also was told last time I saw the GI (brilliant timing with it being just three days before Christmas) that he's going to be testing me for diabetes (again), coeliacs, hepatitis a, b and c, lupus and various other chronic illnesses. This was after he told me "Your liver is looking better.", to which I squeaked "There was something wrong with my liver?". He'd been telling me my bloods were fine, even when I was asking about them, and then he turns round and tells me there's something slightly off with the liver, that it could just be fatty liver from all the weight I put on (that he didn't warn me about), but he'll test me for everything else just in case. Wonderful way to say Merry Christmas, no? Here, merry Christmas, and have some stress.
I'm also considering a second opinion on my joints. It just doesn't seem fair to me that whenever I go there I say, "Blah thing is making my joints hurt worse" (ie, keeping me awake at night, making it difficult to walk or drive, etc) and being met with, "That's nice, do blah and that'll make it better". Blah is the same thing in both sentences, whether that be heat or exercise or whatever the heck it is.
Meanwhile, now that the bitching is out of the way, on to the better stuff.
Jumping back on the job hunt bandwagon, but am also considering whether to stay put with my family or pack up and move, possibly to another state. Partly for the independence, partly just for the heck of it.
Found another Sue Shepherd cookbook today, so will hopefully be attacking recipes out of there soon. It's just so much better when I can pick up a cookbook and know that I've only got to worry about one gut issue (in this case the Crohn's), rather than both.
29 Dec last year, bought a new car. Picked it up on New Years Eve. Shiny showroom-new red Getz. And it's brilliant! Handles the freeways and dirt roads perfectly. Old car was getting just a little old and rattly, and while possibly would have kept going for ages, it needed work and I was looking at getting the new car anyway, so I decided to make the best of some sales. Very happy with it though, and wouldn't trade it for the world right now.
Secondly, not dead. :D
Time for an update though. New years was spent at home. Tired, and had some sort of bug/virus thing which just wasn't nice. Think I was asleep by about 10 and woke up about 12:05 to fire crackers going off nearby. Five minutes late guys! Vaguely got over that virus and then felt like I had another coming on, though it's settled down.
Absolutely exhausted of late though, fairly certain it's the chronic fatigue flaring again. Seriously, settle most things down and one flares again. Not quite enough hands to keep pushing them down.
Also slightly worried about the Crohn's. My gut's been sore possibly since about Christmas, though I'm really not sure whether it's the old hag again, the remnants of the virus, or just because I've not really been following the fructose free diet. Also was told last time I saw the GI (brilliant timing with it being just three days before Christmas) that he's going to be testing me for diabetes (again), coeliacs, hepatitis a, b and c, lupus and various other chronic illnesses. This was after he told me "Your liver is looking better.", to which I squeaked "There was something wrong with my liver?". He'd been telling me my bloods were fine, even when I was asking about them, and then he turns round and tells me there's something slightly off with the liver, that it could just be fatty liver from all the weight I put on (that he didn't warn me about), but he'll test me for everything else just in case. Wonderful way to say Merry Christmas, no? Here, merry Christmas, and have some stress.
I'm also considering a second opinion on my joints. It just doesn't seem fair to me that whenever I go there I say, "Blah thing is making my joints hurt worse" (ie, keeping me awake at night, making it difficult to walk or drive, etc) and being met with, "That's nice, do blah and that'll make it better". Blah is the same thing in both sentences, whether that be heat or exercise or whatever the heck it is.
Meanwhile, now that the bitching is out of the way, on to the better stuff.
Jumping back on the job hunt bandwagon, but am also considering whether to stay put with my family or pack up and move, possibly to another state. Partly for the independence, partly just for the heck of it.
Found another Sue Shepherd cookbook today, so will hopefully be attacking recipes out of there soon. It's just so much better when I can pick up a cookbook and know that I've only got to worry about one gut issue (in this case the Crohn's), rather than both.
29 Dec last year, bought a new car. Picked it up on New Years Eve. Shiny showroom-new red Getz. And it's brilliant! Handles the freeways and dirt roads perfectly. Old car was getting just a little old and rattly, and while possibly would have kept going for ages, it needed work and I was looking at getting the new car anyway, so I decided to make the best of some sales. Very happy with it though, and wouldn't trade it for the world right now.
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