All aboard the Humira train!

Not dead! Promise.

Managed to poop in a jar. Still don't know the results of that. And had the ultrasound thing done. Ultrasound shows everything in the upper abdo to be normal. Blood tests? Thing that's meant to be under 6 is back down to 9. From 179 a week before (a few days after the oh-Gods-I'm-dying pain originally kicked in).

In other good news? Humira! Yay! The dumbass government finally decided that seeing as I couldn't keep food down (or brush my teeth properly without heaving) and had what was a very good dopelganger for pancreatitis with the 6mp, that they'll let me go on Humira. Scraipt is apparently in the mail on the way to the GIs and hopefully I'll be starting it soon after that.

Downside? Doc is insisting that I get taught how to use it by nurses at the hospital my brother died in. Considering I've been told that any chemist/pharmacist with half a brain is capable of showing me how to use it, I'm rather tetchy with the doc over this. He just would not budge on it, even when he knew the reason why. Eh. Shit happens I s'pose.

Still fatigued a fair bit/normal for me, and the joints are still twinging, but fingers crossed (everything crossed really) that the Humira will help that too.

Bring on the world! I'll be human again! :D

So after various appointments with the doc and multiple blood tests, he's come to the conclusion that I don't have pancreatitis. Thank the gods for small mercies. Pain had pretty much gone since stopping the meds, but the nausea is still there to a certain degree. Am managing food, but still feel rather off, even after the maxalon. Have to get antoher ultrasound done on Monday morning, which means more time off work, just to confirm that it isn't pancreatitis, even though he's already decided it isn't. Then have to go get yet more blood tests (will be the fourth lot in a week) and poop in a jar to rule out infection. Downside to that is I'm still having the varying swings between constipation and diarrhoea. Fingers crossed I can poop on cue hey?

Very worried about work. Doctor ordered me off work last week, and as I'm a temp/on a contract I had to ring in every day (not to mention not get paid for it). By Friday the boss seemed a little bit on the cold side. Doc seemed to be about to order me off work for the coming week too, until I told him I'd probably lose my job if he did that. Still seems rather not happy with the idea of me being at work, but what can I do about it? It's work now and maybe save my job, or not work now and possibly not work for quite some time, and with no savings, that's just not an option.

Oh, also was mentioned that the doc will try again for Humira seeing as the 6mp failed. Theoretically they can't turn me down, but we'll see. It is the government after all.

Anyway, I'm off to find my anti-spew drugs in an attempt to shut my stomach up. Hope everyone is well.

It's a small world after all.....

Yep, just had to go and implant that in your brains.

Meanwhile, yes, a small world, a small world of pain that is. To my recent memory (that is the past few months) I have had one weekend (read three days) where my pain was tolerable, even to the point of being gone. I went away that weekend. It was cold. Like -4 degrees C cold. I skipped. I jumped on the crunchy frosted leaves.  I ate food that I just plain should not have gone near. I rather liked that weekend.

Now that I'm not in the wonderful cold land where my pain seems to disappear (Canberra, I do so love it, will move there one day), my pain is back. Joint pain is there. Normal Crohn's pain is there. Random pain just below the middle of my ribcage that feels as though Wolverine has decided to punch me repeatedly is there, blades and all. And now I have this delightful back pain that I have no idea what I did to cause it. All I know is it's causing me to wake up in pure agony of a night bawling my eyes out. Hurts somewhat worse than it did when I spent the night in hospital after a car crash. Hurts to breathe.

But you know what? I get to just shut up and deal with it. I've had people pull up extremely short of calling me a hypochondriac, and the same said people pull up again extremely short of telling me I'm a nutcase and it's all in my head. I've also been told to stop taking so many pain killers (Note, taking no more than the max daily recommended).

Also been knocked back for Humira. Long story short, random doctors lied to me (what a surprise), and the Government has delightful double standards. Eg recognising something as a side effect, acknowledging it as a reason to stop taking it if it was prescribed for illness A, but not if it was prescribed for illness B. Have been put on 6mp, and have watched it increase the diarrhoea, possibly increase all that wonderful chest pain, and it's possibly causing the wonderful nausea that I've had that keeps getting worse. Can't brush my teeth or swallow tablets without throwing up. Then again, the nausea could just be from the cold that I've managed to pick up somewhere.

Dear world: Had enough, fuck you.